Stories

Jessica Garcia – San Antonio, TX

Jessica Garcia – San Antonio, TX

I am a Parry Romberg patient. I was diagnosed at 2 or 3 years of age. PRS has been an aggressively devastating disease that atrophied or disfigured the left side of my face. Imagine growing up in a...

Paola Andrea Rodríguez Triviño – Colombia

Paola Andrea Rodríguez Triviño – Colombia

Hello, good morning, my name is Paola Rodríguez, I am from Colombia and this horrible disease appeared to me at the age of 5, unfortunately in Latin America this disease is rare, so the entity of...

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