“If you cannot do great things, do small things in a great way.”
How to Help
By becoming involved, you will make a positive difference for those affected with PRS. Here are some ways that your involvement will help.
Volunteer Your Time & Talents
Let us know how you can help support the Parry Romberg Foundation.
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Ways to Help
1. Reach out
Reach out to your local representative and state senators to explore ways they can support you.
3. Rare Disease Day
Join in the annual celebration of Rare Disease Day every February 29th/28th sponsored by NORD. Obtain details on the NORD website here.