by Jo-Ann D'Angelo | Feb 20, 2023 | Stories
I am a Parry Romberg patient. I was diagnosed at 2 or 3 years of age. PRS has been an aggressively devastating disease that atrophied or disfigured the left side of my face. Imagine growing up in a time when PRS wasn’t as recognized as present day time. And...
by Jo-Ann D'Angelo | Nov 19, 2022 | Stories
Hello, good morning, my name is Paola Rodríguez, I am from Colombia and this horrible disease appeared to me at the age of 5, unfortunately in Latin America this disease is rare, so the entity of health does not give them much importance, it was not until I turned 19...