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PO Box 725
Hawleyville, CT 06440-0725

prs@parryromberg.org

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Disclaimer: The Parry Romberg Foundation Inc. is a registered 501(c)(3) charity organization. The information provided on this website is for the benefit of the Parry Romberg Syndrome community.

The Parry Romberg Foundation is not a medical provider or health care facility and therefore can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their diagnosis, cure or treatment of a condition or disorder.

Our Foundation extends sincere gratitude to the National Organization for Rare Diseases (NORD) for the opportunity to participate in its RareLaunch Program. Through our collaboration with NORD, we received guidance on how to launch our non-profit, as well as access to knowledgeable NORD staff, support from attorneys, graphic and website designers and mentorship from a strategic planning expert. We are grateful for NORD’s generous support and partnership with our Foundation.

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