1825-2025 Campaign
The Parry Romberg Foundation Inc. proudly introduces its 1825-2025 Campaign to highlight the ongoing gaps in research on Parry Romberg Syndrome (PRS) over two centuries. First documented by Doctors Parry and Romberg in 1825, PRS has been the subject of various articles and individual studies. However, significant knowledge gaps remain, and more comprehensive research is needed to fully understand and address this rare and life-altering autoimmune disorder. The medical tools required to conduct this research are available in this age of AI and advanced genetics. NOW is the time for meaningful progress.
THIS CAMPAIGN IS A CALL TO ACTION!
There are many ways you can help solve this two-century-old medical mystery.
Donate to our Foundation
98% of every dollar goes towards RESEARCH.
Ways to Help
View and follow our Ways to Help on the Get Involved page.
Raise Awareness
If you or a loved one are affected by PRS, you can help raise awareness of this two-century old knowledge gap by sharing your story with local media outlets, on podcasts, with medical outlets; e.g., Patient Worthy, Bionews, Rare Disease Advisor, CheckRare or any other platforms of your choice.
Reach Out
Reach out to your local representative and state senators to to explore creative ways they can help to initiate research on rare diseases.